What is it like living with cystic fibrosis and how have insurance companies affected Bailey's care?

Cystic fibrosis is a genetic condition that impacts all of Bailey's major organs, resulting in multiple organ removals and numerous surgeries. She refers to herself as a 'bionic ballerina' due to her many robotic parts. Last year alone, she was hospitalized nine times and underwent six to seven major surgeries while still maintaining her roles as a working mother. Insurance companies have significantly hindered her care by denying life-saving operations and medications, creating substantial challenges for patients with chronic conditions like hers.